

They helped Grandma Jacquie and Dad with all of the various jobs to make Cole comfortable with feeding and oxygen at the slightest request. 
Welcome from our family here in Utah. We aspire to Bigger, but are settling on Happy for now. We're tickled you stopped by. Please be sure to come back and check on us often. We're not always doing something exciting, but everything we do is noteworthy.


They helped Grandma Jacquie and Dad with all of the various jobs to make Cole comfortable with feeding and oxygen at the slightest request. 


It was a lovely day in Sugar House park and the walk was pretty mild (1 ¼ to 1 ½ mile). We set up a web site, through the national foundation set a target for money – pretty conservative – about $125.00. We sent it out to a few people who set us out to others and before we knew it we exceeded our goals – by almost 100%. WOW. They had a band, breakfast, t-shirts, activities for the kids. A few folks from the national group spoke and they seemed to be as surprised that the Utah chapter raised as much as we did given this was the first walk held in Utah.

We’re looking forward to making it an annual tradition.
