05 September 2008

It's Time to Walk Again


We finally we're able to get our team page created. We had some small issues getting setting up - mostly user errors, I'll admit, but much better than last year.

Please check out our walk page this year at Hydrocephalus Walk Web Page (scroll down once there for more info)


Here's our message ...
As many of you are aware, Cole was born with Hydrocephalus. While some children and adults can live an almost completely normal life, Cole's version of Hydrocephalus comes with some added problems that will have have effected his ability to do many of the things we take for granted including eating, seeing, sitting up, and general physical and mental development. Cole is such a happy little boy and despite his struggles continues to smile and laugh amid the half dozen therapy sessions a month, outside his regular doctor visits.
We are grateful for the dedicated and brilliant doctors, surgeons, and therapists who love and care for Cole and others living with this condition. And with them, we realize that shunts are not a good long term solution. We're thankful Cole's most recent shunt (10 months ago) continues to function as well as it does. But we realize the life span of a shunt can be as little as a few years to about 7-8 years on average and they're not the long term solution. We're also thankful for the work the Hydrocephalus Association is doing in researching alternatives and cures and are committed to helping in whatever small way we can.
We hope you'll stop by and check our progress, come and walk or ride with us next Sat (Sep 20) or if you feel so inclined, we would welcome any small donation you would consider making to help reach the fundraising goals. The three of us thank you for your generosity of time and / or money.

Check out last Sep for pictures from our walk last year (about a month before his first shunt failed)

1 comment:

Jocelyn said...

I hope the walk went well this past weekend. I would have loved to join you... but maybe next year I'll be able to. That little Cole is such a cute boy!