6:30pm and we're into a regular room - Yea!!!!!!

So we are out of the PICU and into a regular room on the Neurotrama floor. The staff in the PICU were absolutely amazing, and as Teri said before, it was nice to have that very individualized attention. However, the PICU is also a very busy place with only curtains separating the beds. It can be quite noisy and of course it is hard to see those sweet children in such distress. So it is nice to be in our own room. And we are really excited we have an individual room this time. It's funny how exciting simple things can be in these type of circumstances.

Prior to leaving the PICU they removed Cole's central line, so one more tube removed. The also removed his foley, so he is peeing into a diaper again and his kidneys appear to be working really well. They have also begun giving him some Pedialite through his G-tube but are taking that very slow so we don't end up aggravating his reflux and causing him to vomit. His face and head are very swollen but we expected that. His eyelids are so swollen, his eyelashes are curling upward. It looks like we've use an eyelash curler on him. He continues to slowly move his arms and legs more often and is vocalizing some with grunts and humming. However, our Neruosurgeon is concerned he is not more alert, so he has ordered an MRI tomorrow to rule out some things. We are expecting that his shunt will be re-internalized Monday, so we will be spending the weekend here.

We are very touched by all the love and prayers so many people are sending our way.

P.S. we are working on finding our camera battery charger so hopefully in the next couple of days we will be able to publish some new pictures.