Update 7:00 - Is he a pincushion or a boy?

We had a fairly quiet day, procedurally speaking. Cole was only scheduled for a PICC line install. Unfortunately, they were not inclined to do the line bedside (which is A OK with me) due to the increased breath holding spells he's having. However, we had already stopped his food and pain medication in preparation for the PICC line since they would have to sedate him, so he was miserable.

Unfortunately because of the problems the IV team had the day earlier getting the replacement IV line, they determined they wanted to do a fluoroscope (run dye through his veins to get a better look) for the PICC on his arm ... which meant another IV. We're averaging no less than three (3) sticks per attempt, and that's now with the ultrasound and decreased swelling. The IV team was so sorry, because they could see how upset he was getting and frustrated by their inability to find a good vein. After they were done, they related a story about a father who 'threatened' them that they would only get one shot at getting the line in -- talk about adding pressure to an already tense situation; and then how the dad then hovered over the IV team arm as they inserted the needle. Luckily, in that situation it only took one attempt. I wish I could say the same was true for Cole.

Luckily, the PICC insertion went much easier (although it still took 2 attempts) but he was sedated which helped with the pain and when finished, we were able to bring him straight upstairs to begin his feed. And within a few hours, once we determined the PICC to be in good condition, our wonderful nurse (of which we've had many) took out the other two IV lines (one in each arm). So again, we lost two lines, but gained one -- but we're still down one. That leaves two to go (PICC and external shunt).

After which we all rested while watching the Aristocats. Actually there was some napping once we all calmed down from the evening and morning adventures. We're so thankful for caring and skilled doctors, nurses, and technicians who care and love Cole as much as we do.